In 1999, a small group of parents affected by unexplained toddler death attended a presentation at the SIDS Alliance national convention in Atlanta, GA.

The presentation by Dr. Henry Krous was entitled “Post-Infancy SIDS-Is it on the rise?” Following the presentation, Dr. Krous agreed to review the children’s records of the families in attendance to learn more about them. Over the following two years, more families who had experienced an unexplained childhood death were identified and Dr. Henry Krous and Laura Gould cofounded the San Diego SUDC Research Project which studied cases of SUDC from 2001- 2012. In 2001, Gould joined Chelsea Hilbert, both SUDC mothers, to create the SUDC Program under the CJ Foundation for SIDS. With each year, the program grew to provide more services to more families with greater needs. In 2014, Gould joined Lorri Caffrey, another SUDC mother, along with Dr. Orrin Devinsky and Jim Lintott to establish the SUDC Foundation as an independent nonprofit organization. The SUDC Foundation was created to continue the mission of the Program, as well as meet the current needs of those touched by Sudden Unexplained Death in Childhood.